Choosing Resilience: A Letter To Myself On The Days Parenting A Child With Special Needs Nearly Swallows Me Whole

Be still. Breathe. I know how heavy your heart is. It feels so oppressive and suffocating and daunting to be tasked with being not only a mother, but master of all trades. You’re overwhelmed keeping track of all you must accomplish each day. All the balls you must juggle to keep things from spiraling into... Continue Reading →

All The Problems With PANS: An Open Letter To The Medical Community

Dear Doctor, I’m sure you’re aware that back in 2012, PANS (Pediatric Acute-Onset Neuropsychiatric Syndrome) was formally proposed and described in a white paper by a small handful of physicians who had extensive expertise in PANDAS. While this was welcome news to those who recognized that the neuropsychiatric features seen in PANDAS were also seen... Continue Reading →

The Cost of Rejecting a Cure For Autism

In the United States, an estimated $262 billion per year is spent on care and services for people with autism. This number does not include social security and benefit payments. If the startling trend of better diagnosis increased autism rates continues, care of individuals with autism in the United States will exceed one trillion dollars per... Continue Reading →

High Priest of Public Health, Senator Richard Pan, Votes to Stop Penalizing Those Who Knowingly Spread HIV

Last week, the LA Times reported that The High Priest of Public Health, Senator Richard Pan, voted to stop penalizing those who knowingly expose others to HIV though unprotected sex. Under the bill, failing to disclose one has HIV or AIDS before engaging in unprotected sex will no longer be a felony. The bill would... Continue Reading →

What You Should Know If You’ve Ever Wondered If Your Child Had PANDAS or PANS (Even If Your Doctor Ruled It Out)

Despite its acknowledgement by the National Institute of Mental Health two decades ago and the estimated one in 200 children it impacts, proper recognition, diagnosis, and treatment of PANDAS and PANS continues to be an uphill battle for parents and their suffering children. One third of children see more than five doctors before being correctly diagnosed... Continue Reading →

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