Choosing Resilience: A Letter To Myself On The Days Parenting A Child With Special Needs Nearly Swallows Me Whole

Be still. Breathe. I know how heavy your heart is. It feels so oppressive and suffocating and daunting to be tasked with being not only a mother, but master of all trades. You’re overwhelmed keeping track of all you must accomplish each day. All the balls you must juggle to keep things from spiraling into... Continue Reading →

All The Problems With PANS: An Open Letter To The Medical Community

Dear Doctor, I’m sure you’re aware that back in 2012, PANS (Pediatric Acute-Onset Neuropsychiatric Syndrome) was formally proposed and described in a white paper by a small handful of physicians who had extensive expertise in PANDAS. While this was welcome news to those who recognized that the neuropsychiatric features seen in PANDAS were also seen... Continue Reading →

What You Should Know If You’ve Ever Wondered If Your Child Had PANDAS or PANS (Even If Your Doctor Ruled It Out)

Despite its acknowledgement by the National Institute of Mental Health two decades ago and the estimated one in 200 children it impacts, proper recognition, diagnosis, and treatment of PANDAS and PANS continues to be an uphill battle for parents and their suffering children. One third of children see more than five doctors before being correctly diagnosed... Continue Reading →

My Son’s Autism Was Caused by Autoimmune Encephalitis and No, I Won’t “Accept” It.

Something highly unusual in the world of autism happened to my son last week. He received a diagnosis of autoimmune encephalitis from a prominent and highly respected mainstream pediatric neurologist. Moreover, she stated this to be the cause of his autistic behaviors. Seven years after his devastating regression into autism, we finally have answers as... Continue Reading →

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